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Book:
Property Rights in Blood, Genes and Data
Naturally Yours?
Brill/Martinus Nijhoff Academic Publishers. Leiden, Boston 2005
25% discount if ordered at www.brill.nl ,
code 47034
More about this book...
Journal Articles:
- The 'Antoni van Leeuwenhoek-right': the case for a new constitutional right to pursue life and health, Preadvies Nederlandse Juristen Vereniging 2009
- A Compulsory Government Royalty Fee; a Third Way or Double Pay? Nature Biotechnology, accepted July 2008
- Weefsel, winst en belasting, Tijdschrift voor Gezondheidsrecht, 2008 (32), nr. 6
- Regulation of Property in Human Tissue, book chapter in: Altruism Reconsidered, Exploring New Approaches to Property in: Human Body Parts, Eds. Michael Steinmann / Peter Sykora / Urban Wiesing, Ashgate 2008 (in print)
- Accessibility of Biological Data: survey on and recommendations for a Community Resource, book chapter in: The Role of Intellectual Property Rights in Biotechnology Innovation, D. Castle, Editor, McGill University & European University Institute, Elgar Publishers 2008 (in print)
- Between Tuskegee and Framingham: Participants'Right to Full Disclosure of Biobank Findings, J.A. Bovenverg, T. Meulenkamp, E. Smets and S. Gevers, submitted to Journal of Genomics, Policy and Society, September 2008
- Legal Pathways for Cross Border Research, European Journal of Human Genetics, January 2007
- Mining the Common Heritage of our DNA, lessons learned from Grotius and Pardo, Duke Journal of Law and Technology, Winter 2005.
- Whose tissue is it Anyway? Nature Biotechnology, Vol 37, August 2005.
- Blood, Sweat and Grants: Honest Jim and the European Database-right, Journal of Genomics, Policy and Society, August 2005.
- Towards an international system of ethics and governance of biobanks: a special status for genetic data? Journal of Critical Public Health, Special Issue on Biobanks, Winter 2005.
- "Inalienably Yours? The new case for an inalienable property right in human biological material: Empowerment of sample donors or a recipe for a tragic Anti-Commons?", 1:4 SCRIPT-ed, 2004.
- Ownership and Commercialization of Human Genetic Research Databases, background paper commissioned by Health Canada for the OECD, Health Canada and the Japanese Association of Legal Medicine, 2004, (OECD report forthcoming),
- ‘Should Genomics Companies Set Up Database in Europe’, first published in Nature Biotechnology, Vol 18, September 2000, with a fully annotated and expanded version published in European Intellectual Property Review, [2001] E.I.P.R., Vol 23, August 2001.
Invited lectures:
- Establishing a Legal Platform for Cross Border Research in the EU, BBMRI Kick-Off meeting, Hinxton, WellCome Trust Campus, Cambridge, UK, February 2008 and BBMRI Joint Meeting of Participants and Associated Members, Florence, Italy, April 2008
- Overcoming Legal and Regulatory Challenges in the International Transport of Samples, IIR Conference on Biobanking and Biorepositories, Munich, Germany, November 2007
- Sample vs. Data: what are the legal regimes governing biobanking? EU Institute for Prospective Technological Studies, Sevilla, Spain, March 2007
- Cross border flow of human tissue: a proposal for a legal platform, European Science Foundation, Amsterdam, Netherlands, December 2006
- Legal Implications of Population Biobanks, University of Leuven, Belgium, 2007
- Ownership of Blood, Genes and Data, Institute for Information Law, University of Amsterdam, December 2006
- Patient Organisations as Owners and Managers of Tissue and Data, EUROBIO, Paris, France, November 2006
- Taxing Tissue, World Congress of Medical-Law, Toulouse, France, August 2006
- Property rights in tissue, EU Sixth Framework Project "Property Regulation in European Science, Ethics and Law (CESAGEN), Bratislava, June 2006
- Regulation of Universal Biobanks: How to share the Benefits, Health Law Institute, University of Alberta, Edmonton, Canada, 2006
- Value & Risk of Genetic Databases, Brocher Foundation, Geneva, November 2005
- The Role of Intellectual Property Rights in Biotechnology Innovation, McGill University and European Institute, Florence, October 2005
- Nuts and Bolts for Sharing Academic Biomedical Databases, International Working Group on Ethics, Governance and Public Engagement, of the Public Population Project in Genomics (P3G), Cambridge, September 2005
- Res universitatis in academisch biomedische datacollecties behoeft een Data-Delingsbeleid, Netherlands Royal Academy of Sciences (KNAW), September 2005
- National Biobanks: Ownership and Commercialization, workshop on Large-scale Human Genetic Research Databases, organized by the OECD, Health Canada and the Japanese Association of Legal Medicine, Tokyo, February 2004
- Multiple lectures for Dutch National Biotech Association, Dutch National Genomics Program (BioPartner) on technology transfer
- ‘Ownership of Biobanks’, EU Sixth Framework Project ‘Property Regulation in European Science, Ethics and Law’ (CESAGEN), Cardiff, June 2004
- ‘Ownership of Human Biological Material’, the Netherlands Centre for Biomedical Systems Biology, Leiden 2004
- Access to Genomic Databases, the Human Genome Organisation (HUGO) annual conference, Cancun, April 2003
- Database-rights in Genomic Databases, the Human Genome Organisation (HUGO) annual conference, Shanghai, April 2002
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